Online ISSN: 2325-7466
2006
Triannual
National Association of Special Education Teachers (NASET)
United States

Articles

Parental Perceptions of the Transition to Adulthood for Their Children with Disabilities

  • Megan Gross, B.S. (Author) Texas Woman’s University image/svg+xml
    Megan Gross, B.S., is a 2019 graduate of Texas Woman's University's bachelor’s program in Child Development. She is currently a master’s student in Texas Woman's University's program in Occupational Therapy.
  • Annamayil Manohar, B.S. (Author) Texas Woman’s University
    Annamayil Manohar, B.S., is a 2019 graduate of Texas Woman's University's bachelor’s program in Child Development. She is currently a doctoral student in Washington University's program in Occupational Therapy.
  • Katherine K. Rose, Ph.D. (Author) Texas Woman’s University
    Katherine Rose, Ph.D., is a professor in child development and child life in the Department of Human Development, Family Studies, and Counseling at Texas Woman’s University, where she teaches courses on infant/toddler development, early child development, childhood and adolescence, research methods, and grief and loss, at both the undergraduate and graduate levels. Her research focuses on parental decision making about non-parental child care arrangements and her work has been presented at state, national, and international professional conferences, and has been published in academic journals such as the Journal of Family Issues, The International Journal of Inclusive Education, Child and Youth Care Forum, and Community, Work and Family.
DOI
https://doi.org/10.64546/jaasep.455
Abstract
This quantitative study sought to examine parental perceptions of the transition to adulthood for their children with disabilities. Seventy-seven parents completed an anonymous online survey through PsychData regarding aspects of their perceptions of this transitory time. Questions were adapted from the "Autism Parenting Stress Index" (Silva & Schalock, 2012) and the Center for Disease Control’s (2007) "Survey of Adult Transition and Health." The researchers sought to examine if associations existed among the child’s age, the amount of services the child received, and/or the level of help the parent perceived the child to need with everyday tasks and parental stress, coping, and concern about this transition. Results revealed significant associations between the dependent variables and the age of the child; the amount of services the child received; and how much help the parent perceived the child would need with routine tasks, personal needs, and participation in activities.
Keywords
Age, Autism, Coping, Disabilities, Independent Living, Parent Attitudes
References

ADA National Network (2020). What is the definition of disability under the ADA? Retrieved from https://adata.org/faq/what-definition-disability-under-ada

Burnside, K., Wright, K., & Poulin-Dubois, D. (2017). Social motivation and implicit theory of mind in children with autism spectrum disorder. Autism Research: Official Journal of the International Society for Autism Research, 10(11), 1834–1844. https://doi.org/10.1002/aur.1836 DOI: https://doi.org/10.1002/aur.1836

Bronfenbrenner, U. (1976). Reality and research in the ecology of human development. In Journal Supplement Abstract Service Catalog of Selected Documents in Psychology, 6,(4). Washington: American Psychological Association.

Bronfenbrenner, U. A., & Morris, P. A. (2007). The bioecological model of human development. Handbook of Child Psychology. doi:10.1002/9780470147658.chpsy0114 Cheak-Zamora, N., Teti, M., and First, J. (2015). ‘Transitions are scary for our kids, and they’re scary for us’: Family member and youth perspectives on the challenges of transitioning to adulthood with autism. Journal of Applied Research in Intellectual Disabilities. 28, 548–560. DOI: https://doi.org/10.1111/jar.12150

Centers for Disease Control and Prevention. (2007). Survey of adult transition and health. [Measurement Instrument]. Retrieved from https://www.cdc.gov/nchs/slaits/sath.htm

Centers for Disease Control and Prevention. (2019). Autism Spectrum Disorder: Autism and developmental disabilities monitoring network. Retrieved from https://www.cdc.gov/ncbddd/autism/addm.html

Committee on Disability in America, Board on Health Sciences Policy. (2007). The future of disability in America, M. J. Field, and A. M. Jette (eds.), Washington, DC: National Academies Press.

Duerden, E. G., Oatley, H. K., Mak-fan, K., Mcgrath, P. A., Taylor, M. J., Szatmari, P., & Roberts, S. W. (2012). Risk factors associated with self-injurious behaviors in children and adolescents with autism spectrum disorders. Journal of Autism and Developmental Disorders, 42(11), 2460-70. doi:http://dx.doi.org.ezp.twu.edu/10.1007/s10803-012-1497-9 DOI: https://doi.org/10.1007/s10803-012-1497-9

Education Week. (2015, May 29). Map: Graduation Rates by State, Student Group. Retrieved from https://www.edweek.org/ew/dc/2015/map-graduation-rates-by-state-student-group.html

Erikson, E. (1963). Childhood and society. New York, NY: W.W. Norton Publishers.

First, J., Cheak-Zamora, N., Teti, M., Maurer-Batjer, A., & First, N. (2018). Youth perceptions of stress and coping when transitioning to adulthood with autism: A photovoice study. Qualitative Social Work. doi:10.1177/1473325018757078 DOI: https://doi.org/10.1177/1473325018757078

Gibson, B. E., King, G., Kingsnorth, S., & McKeever, P. (2014). The 'placement' of people with profound impairments across the lifespan: re-thinking age criteria. BMC medicine, 12, 83. https://doi.org/10.1186/1741-7015-12-83 DOI: https://doi.org/10.1186/1741-7015-12-83

Halfon, N., Houtrow, A., Larson, K., & Newacheck, P. W. (2012). The changing landscape of disability in childhood. The Future of Children, 22(1), 13-42. doi:10.1353/foc.2012.0004 DOI: https://doi.org/10.1353/foc.2012.0004

Hedley, D., Uljarevic, M., Wilmot, M., Richdale, A., & Dissanayake, C. (2018). Understanding depression and thoughts of self-harm in autism: A potential mechanism involving loneliness. Research in Autism Spectrum Disorders, 46, 1-7. DOI: https://doi.org/10.1016/j.rasd.2017.11.003

Jobe, L. E., & White, S. W. (2007). Loneliness, social relationships, and a broader autism phenotype in college students. Personality and Individual Differences, 42(8), 1479–1489. doi:10.1016/j.paid.2006.10.021 DOI: https://doi.org/10.1016/j.paid.2006.10.021

Liao, X., & Li, Y. (2019). Economic burdens on parents of children with autism: a literature review. CNS Spectrums, 1–7. doi:10.1017/s1092852919001512 DOI: https://doi.org/10.1017/S1092852919001512

Matthews, N.L., Smith, C.J., Pollard, E., Ober-Reynolds, S., Kirwan, J., & Malligo, A. (2015). Adaptive functioning in autism spectrum disorder during the transition to adulthood. Journal of Autism and Developmental Disorders. 45:2349–2360. DOI: https://doi.org/10.1007/s10803-015-2400-2

National Autistic Society. (2018). Autism facts and history. Retrieved from https://www.autism.org.uk/about/what-is/myths-facts-stats.aspx

National Center for Education Statistics (2014). Fast facts. Retrieved March 26, 2017, from https://nces.ed.gov/fastfacts/display.asp?id=64.

Nicholas, D., Mitchell, W., Dudley, C., Clarke, M., & Zulla, R.. (2017). An ecosystem approach to employment and autism spectrum disorder. Journal of Autism and Developmental Disorders, 48, 264–275. doi:10.1007/s10803-017-3351-6 DOI: https://doi.org/10.1007/s10803-017-3351-6

Office of the High Commissioner of Human Rights. (2006). Convention on the rights of persons with disabilities and optional protocol. Retrieved from: http://www.un.org/disabilities/documents/convention/convoptprot-e.pdf

Perrin, J. M., Anderson, L. E., & Cleave, J. V. (2014). The rise in chronic conditions among infants, children, and youth can be met with continued health system innovations. Health Affairs, 33(12), 2099–2105. doi:10.1377/hlthaff.2014.0832 DOI: https://doi.org/10.1377/hlthaff.2014.0832

Pelton, M., & Cassidy, S. (2017). Are autistic traits associated with suicidality? A test of the interpersonal‐psychological theory of suicide in a non‐clinical young adult sample. Research in Autism Spectrum Disorders, 10(11). doi:10.1002/aur.1828 DOI: https://doi.org/10.1002/aur.1828

Silva, L. & Schalock, M. (2012). Autism parenting stress index: Initial psychometric evidence. Journal of Autism and Developmental Disorders. 42: 566. doi:10.1007/s10803-011-1274-1 DOI: https://doi.org/10.1007/s10803-011-1274-1

Schalkwyk, G. & Volkmar, R. (2017). Autism spectrum disorders: Challenges and opportunities for transition to adulthood. Child and Adolescent Psychiatric Clinics of North America, 26(2), 329-339. DOI: https://doi.org/10.1016/j.chc.2016.12.013

Taylor, J.L. & Henninger, N.A. (2014). Frequency and correlates of service access among youth with autism transitioning to adulthood. Journal of Autism and Developmental Disorders. 45:179–191 doi:10.1007/s10803-014-2203-x Taylor, J.L. & Seltzer, M.M. (2010). Employment and post-secondary educational activities for young adults with Autism Spectrum Disorders during the transition to adulthood. Journal of Autism and Developmental Disorders. 41: 566. doi: 10.1007/s10803-010-1070-3 United States Department of Education. Office of Special Education and Rehabilitative Services. (2017). A transition guide to postsecondary education and employment for students and youth with disabilities. Retrieved from https://sites.ed.gov/idea/files/postsecondary-transition-guide-may-2017.pdf

There are 26 references in total.
How to Cite
Gross, M., Manohar, A., & Rose, K. K. (2021). Parental Perceptions of the Transition to Adulthood for Their Children with Disabilities. Journal of the American Academy of Special Education Professionals, 16(2), 31-50. https://doi.org/10.64546/jaasep.455

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  • Submitted May 23, 2021
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